Support for children with oculogyric crises and/or encephalitis
Projet collectif de documentation clinique
Accompagnement d’enfants présentant des crises oculogyres et/ou des encéphalites
This project aims to collect and analyze clinical observations from certified Feldenkrais Method practitioners working with children with oculogyric crises and/or encephalitis.
The main objective is to build a descriptive and reflective corpus to document how Feldenkrais practitioners approach these specific situations:
- what observations emerge when working with these children;
- what directions of attention or avenues of exploration emerge in the course of the work;
- what session conditions or experiential situations seem to promote an adjustment in the child’s functioning, understood as an organized and dynamic whole.
This initiative is part of a process of collectively developing clinical elements based on experience and observation.
It does not aim to establish a protocol or assert a corrective model, but rather to highlight the processes of attention, exploration, and adjustment that characterize Feldenkrais practice in this particular field.
Proposed areas of contribution
Interested practitioners are invited to share their observations and reflections on the following points:
- Modalities of onset of crises: context, position, duration, frequency, observed conditions of triggering or appeasement;
- Functional aspects associated with seizures: involvement of speech, swallowing, breathing, or other relevant coordination;
- Support framework: frequency, duration, and evolution of work over the course of sessions, adjustments in the child’s progress;
- Engagement of the child: abilities or attempts at active participation, even minimal, during moments of crisis or recovery.
Scope of the project
By gathering this qualitative data, we hope to highlight the diversity and consistency of the approaches implemented by Feldenkrais practitioners.
This documentation may contribute to:
- fostering a collective reflection on our practice in complex neurological contexts;
- clarifying the role of observation and listening of a specific nature in supporting children;
- proposing avenues for interpretation and understanding of the processes of organization and self-regulation in these situations.
How to participate
Practitioners who wish to contribute to this collective work are invited to contact Stéphanie Ménasé.
Contributions will focus on case descriptions, medical history, and clinical observations that can be used to create a joint paper in the form of an article or shared file, similar to a clinical review.
A template for the information to be provided may be available.
November 8, 2025